Friday, February 20, 2009

Mito-'drain' Update

'You take the good, you take the bad, you take them all and there you have the Facts of Life, the Facts of Life...'

Is it stuck in your head yet?
Oh good. Mission Accomplished! =)

I just got off of the phone with my Oncology nurse and now I feel about 2 inches tall and technically it is not my fault. But I still feel like I am in Time Out for being STUPID! (I would be scolded by Emily if she heard me say that!)
This is how the story goes. Eric cancelled our home phone number TWO months ago with Verizon. Apparently...our voice mail is still active. Well, I called and left a message for the nurse about my new cell phone number but they were still leaving messages on my home number.
THEREFORE, I did NOT get the message that I needed to go up -again- on my Chemo pills (Mitotane). Arghh.
I was scolded and told that I had to 'confess my sins' to the Dr next week!(not her words, but my interpretation)
She was nice about it, but still irritated that I hadn't started on the 10 chemo pills a day yet. But I didn't know! And I did call and give them my new number. And she has left messages on my new cell, so I knew she had it and assumed that was the only number they were using. What other messages am I missing when people think they are reaching me?? Arghh again!

My mitotane level is at a 3. It needs to be a minimum of 13. I cannot imagine what that means for my energy level and confusion/memory loss in the future. Perhaps nothing, but I am nervous. Part of the questioning I have for my doctor is if I have to take 4 times more pills will my side effects be 4 times worse? Or will my body adjust as I go up on the 'meds' and I will basically feel like I do now? Perhaps only time will tell...

I will let you know how 'confession' goes next week with my doctor!
Triann

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